Mini crisis averted

Caelen's o2 sats are still sitting in the low 70's and at times, upper 60's. The docs were worried that he still has leakage around the shunt placed to "block" the Fontan and that is what is causing the lower sats. They did an echo and found significant leakage. The good news is we have an answer and its fixable. The mini crisis on my end was how they were going to fix it.

There's 2 main ways to address this:
1. Time. Give Caelen more time to clot off the flow and block it.
2. Go back to the OR and open his chest to completely take down the Fontan.

Thankfully, Dr Rome, the cath Dr answered his phone on a Saturday, and he said that he expected this because Caelen left the cath lab with leakage, and it can take up to 6 weeks to clot off. Surgery is not off the table, but we're not close to that option now. Dr Rome felt that Caelen just needs time and that this wont affect him being extubated or going home.

Now don't go getting excited about the home word yet. We have some work to do on his lungs and rehabbing them. But once again, Caelen has proven that time is his friend and that's what he needs. And that's ok. We're only 1 month in and compared to the Glenn, well, the first Glenn, one month is easy. Whatever it takes to get my beautiful angel back home, then that's what we'll do.

On a side note, I met a new heart mom the other day and we've exchanged numbers. So I'm making new friends here and finding people to laugh with. It's also a big bonus that she likes wine ;) So I'm sure we'll find a nite when our kids fall asleep and sneak out for a glass. Her son's name is George and like Caelen, he's had a rough go of it. So if you wouldn't mind adding George to your prayer list, I'd be very appreciative. I haven't met him yet, but his mom Julie says he's beautiful. In fact, she tells him that God spent so much time on his face that he ran out of time for his heart. Lol!!! Judging by how pretty his parents are, I'd guess he really is a good looking boy. I love that through all of this, she maintains her sense of humor.

Ok, time to sign off. As always, thanks for your continued love, support and prayers. Please pray for the shunt to clot off and Caelen's sats to improve, and please pray for his puffiness to go away. Or in general, a full, miraculous healing :)

Love,
Katye