He's back and did fine. The dr was able to go thru his neck and no intervention was needed. The fenestration is open and has good flow and the fontan pressures were only slightly elevated. Physiologically there isn't anything wrong. So we're at a loss for answers.
I think Caelen just needs more time. His effusions lasted 9 weeks after the Glenn, not that I want that to happen again, but I really think he just needs more time.
Please pray, and please ask for these damn effusions to stop.
Thanks for all of your prayers for safety and healing for Caelen. We still need them.
Love,
Katye
So glad he made it though the cath without any complications. The Fontan is known for drainage. We'll be praying that it won't last 9 weeks and you see continued progress over time. Stay strong momma, you're doing great!
ReplyDeleteUnfortunately, we share effusion hate. I feel ya. I hate it for Caelen and for you and Martin. It's frustrating, but damnit, only time will tell. And my hope is that it is just time that he needs. Hang in there! One day at a time.
ReplyDeleteTons of Love,
Lori, Rosie, Drew, Lee & Shea
So happy it went well....hang in there! Prayers for effusions to cease soon!
ReplyDeleteI, too, am of the "Effusion Hate" club.....hang in there, dear little buddy. Hugs to you, too, Katye and Martin....
ReplyDelete