Wednesday, October 3, 2012

Fontan status

Caelen is having trouble accepting his fontan. It's almost like he is rejecting it. His heart is pumping too hard and too fast and not filling enough. He also has a lot of effusions that are dumping massive amounts of fluids from his chest. It's always better out than in, but he's so dehydrated. The docs are replacing every drop that comes out, plus more, but they can't seem to catch up. The dehydration isn't helping his heart rate.

Dr Spray is involved in every step and thinks that if we can't control the systems, then he wants to take Caelen back to the OR and take down the fontan and restore him to a Glenn, either tomorrow or Friday.

Please pray for his heart to accept the fontan and slow down and fill to a normal rate, the effusions to stop, his lungs to heal and for Caelen to heal and recover fully so he can come home. Thank you all for the prayers and messages. Although I can't respond to all of them, I am reading them.

9 comments:

  1. God Bless you guys. I have heard of a case where a girl didn't get her Fontan until she was in her teens. God willing, Caelens will take, but if not, whatever it takes to get your boy well again and home with his family. Take care, stay strong....we'll keep praying for you

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  2. So scary. Many prayers that the correct path - Fontan or back to Glenn - will present itself in the next 24 hours. You guys are constantly in our thoughts.

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  3. God Bless :) praying for him and you guys 24/7

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  4. I am good friend of the Millers, and i understand your little guy is having a tough time right now. I will get our prayer warriors on it! May he give Caelen and your family the strength to get through this tough part of the road.

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  5. Also friends of the Millers and prayers have already started for your little man and you all as well! We will be keeping up with this story and praying until he is home where he belongs! GOd bless and were ready to hear positive news!!

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  6. So many prayers for Caelen.

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  7. Praying and sending healing energy your way constantly. Come by anytime to talk.
    - Alex, Aaron, Carys, Kismet, & Macsen
    P. S. last door on the left

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  8. Kayte stay strong, so many prayers are coming your way. We all love Caelen and want healing for that sweet boy.

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  9. Kayte and Martin I have been down the same path with Kelly back in 1994. Thankfully she did not reject the Fontan, but we were in the hospital for 3 weeks with plural effusion. Hang in there. You have excellent doctors, a great hospital, and a fighter in your little boy.

    Sandy Meyers

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