Caelen has plastic bronchitis again, so we are heading back to CHOP for treatment. The plan is to start nebulizers and possibly a new med. The reason we can't just start the meds at home is because they need FDA approval and each one costs about $4,000 per month. So we have to go the hospital route first, then hopefully insurance approval next week and home.
Just another day in the life of Caelen and HLHS, lol. I'll update more once we get settled and have a clear plan.
On a side note, why in the hell is the bay bridge backed up? Are that many people going to the eastern shore for the holiday weekend? Ugh.
Love,
Katye
Will keep Caelean in prayer...the up and down must be nerve wrecking...I just know as soon as they figure this all out things will be easier to handle...Martin,if insurance does not cover, call the manufacturer of the drug, for sometimes they offer drugs at reduced rates and some even offer help for the drugs...
ReplyDeleteKatye, I don't know how you do it. You are amazing and my HERO! WOW!
ReplyDeletePrayers are coming to Philly for C! Heal little guy!
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