We learned today that when the cath Dr and our cardiologist told us last week that surgery would be in 2-4 weeks, they didn't realize that our surgeon, Dr Tom Spray was booked until thanksgiving. So now the scheduler has to get together with Dr Spray and his team to figure out how to squeeze us in. It's made even more frustrating because it feels a little like we rushed to get the cath, were told 2-4 weeks, and now Caelen really needs the surgery because of the collaterals. So waiting around is a poor option because:
1. Caelen is now working harder to breathe and can't run around.
2. He is in isolation mode again to prevent germs. So we're bored.
3. He can't go to school and risk germs and infections.
So hang in there with me and as soon as we have confirmation, I'll post an update.
Love,
Katye
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