Caelen is so silly sometimes. The poor child is exhausted!! Yet he's laying in bed, in the dark, talking to himself. We're all sitting here trying not to laugh.
Martin gave him quite the workout today. They had a daddy/son bonding day, and I'm not sure who's more tired. There was a lot of walking and wagon rides and Caelen looks great! His sats are a little off, which is weird, but he looks good, and is acting appropriately so I'm not too concerned.
No big changes, he's being weaned down on the milrinone, which helps slow his heart a bit so it relaxes and has time to fully fill. This is an IV med, so it'll be great when it's gone in a few days. At the same time he's being given enalapril thru his g-tube, which does the same thing and he will be on at home.
He's had X-ray and lab holidays, so not much to report on those fronts, but all in all, he's doing well. Martin asked for a report from Dr's Spray and Rome tomorrow to see where their heads are regarding Caelen's progress and status. Once I know more, I'll post.
A big thank you to Aunt Momo for organizing and awesome care package that arrived today. There were so many wonderful people who sent sweet messages, thank you all for your loving words. Sounds like a Florida vacation may be in order to thank the fan club.
Thank you all again for your prayers, please keep praying so we can get out of here.
Love,
Katye
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