CCU Step down

We made it!!! Caelen made it to the step down unit (CCU) on Tuesday. What a great feeling! He's doing really well overall and plans are being made for eventual discharge home. When that will be I'm not sure. Could be as short as 2 weeks. Could be longer.

Caelen does require more oxygen support during the day now while he's awake, bur not so much while he sleeps. There's a couple of theories on that but no answers yet. In all likelihood he'll come home on some sort of oxygen support, but we don't know if it will be full time, day time or just occasional. That's why we're being watched here in the CCU, to see where his oxygen sats will end up and whether he needs to go back to cath lab now or at a much later date. As in, go home, get the heck outta here and come back for cath in a year. That's everyone's preference.

Tonight Caelen had his first bath in the tub with water since September 23. He was hesitant until he saw the water and then it was game on. Hopefully the pictures will load.

Now we're sitting together in his bed watching Gabba. He keeps telling me, "no sing mommy." Smart ass. This is all we watch and I know every song, but he won't let me sing along. When did my 3 year old become 13?!?

I think that's it for now. We keep pretty busy during the day and stay out of the room as much as possible. Thanks again for all of the love, care packages, support and prayers.

Love,
Katye