2 good days

Dare I say that we've had 2 really good days in a row? Both of his chest tubes are gone and his X-ray today looks awesome, well, for Caelen it's awesome. He got the art line in his foot out yesterday and we've tried walking again with pt. Lots and lots of wagon rides are our daily exercise and they're made so much easier without oxygen. Yep, Caelen took off the oxygen today around 1:00 and he's been doing great ever since!!

So I'm scared of jinxing things, but hey, they're looking up. We even saw Dr Rome in the hall today and he gave us a thumbs up! Does this mean we've avoided cath lab? Not sure, but no one is rushing to do anything to Caelen right now. And I'm thrilled!!

His milrinone is being weaned and that's the last of the IV meds. He has reached goal on his feeds, so we are going to try for bolus, or condensed feeds soon. Right now he gets 55 cc per hour for 22 hours a day. The goal is to get back to our home schedule of 4 bolus feeds per day. But that goal won't keep us here.

What is keeping us here? Caelens heart and lungs, but he's getting better every day. So we just keep plugging along and getting out of the room as much as possible.

Lastly, our friend Jaclyn is doing better and her anti seizure meds needed an adjustment. She was home around lunch time and even got to go trick or treating. Thank you all for your constant prayers.

Love,
Katye