RSV...CICU ...Grateful

Where to start...Caelen spent 8 days in the CICU in Orlando last week for RSV and pneumonia.  That sucked!  We spent years, shots and a big co-pays protecting Caelen from RSV, and at the end of the day, it was as bad as we feared.  Thank goodness we're out now and healing. 

Instead of going back to Jupiter with my sister and her family, we've gone south to Boca Raton to live with my best friend Morgan Carpenter and her family. We needed to keep Caelen away from the pre-school germs for at least a month and give his lungs a chance to heal. So Morgan and her husband Jason were kind enough to take us in for a while. This comes down to my post: Grateful. 

I'm incredibly grateful that my sister Jen and her family have housed us for the last 3 months.  You can't ask for much more than to have our own room and a big space inside their play room.  But for now, we need to take a break. 

Morgan and Jason have 2 girls, Savannah and Grace, 9 year old twins. The girls finally got their wish this past summer in getting their own rooms. Then we came. Now the girls are not only sharing a room, they are sharing a bed.  I'm so incredibly grateful to the entire Carpenter Family for taking us in on such short notice, and especially to the girls for giving up on their own space so that Caelen and I could stay.  Caelen loves it here and he loves the time he gets with the girls, and of course with Aunt Momo and Uncle Jason.  They have always given Caelen extra attention and he thrives in their house. 

It takes a lot to take Caelen and I in. He has oxygen, 50' of tubing, breathing treatment vest and equipment, 23 meds, 3 different formulas for feeds, specialized milks for his feeds, and of course all the gear that goes with his g tube. We take up a lot of space. But Morgan and Jason didn't hesitate to offer us shelter, and shift their lives to give Caelen a safe place to recover. And for their family I am grateful.  

So I end tonight by simply saying thank you to everyone who continues to walk down this road with us. 

Love,

Katye & Caelen