Cardiology clinic

We are just leaving CHOP for Caelen's clinic follow up. He had a blood draw, EKG and echo. All were good and we don't need to be seen again until October :)

We discussed the plastic bronchitis and transplant, and what Dr Rychik said is that we are taking a wait and see approach. He felt confident that we have attained a level of stability and the goal is to maintain it. If something starts to change, or the plastic bronchitis becomes a bigger problem, then those are the triggers that would precipitate the listing process for transplant. 

Overall, Dr Rychik and Katie Dodds were pleased with Caelen's health and his progress. We even got to visit a few of our favorite friends, Weston and Khloe, and both looked good. It was nice to be back at CHOP and see friends. 

On our way to CHOP with a blue Mohawk 

Clinic playing with his new favorite toy Mike from Monsters University. 

I know I haven't posted about our trip to Florida but i'll work on that. I've got to sort through photos and get them off the camera, but Caelen had a blast in FL and got in plenty of pool time. 

Thank you to all who keep Caelen and our heart warriors in your prayers :)

Love,

Katye