Martin and I are divorcing, and Caelen and I are moving to Florida to be with my family. The reasons don't matter, but what does is that Martin and I remain committed to being the best parents for Caelen that we can, and giving him the best life that we can. Florida will be a new start for Caelen and I, and I hope, better weather and better health for Caelen.
Speaking of Caelen, he is doing well. He is still having casts, but not as many. We have not heard back from the transplant team yet, but I did speak with Katie Dodds last week and she said that there are parameters for Caelen's case to be discussed. Specifically, that she only wants the case discussed when 5 key people are all together for transplant conference. Some of those 5 are Dr. Spray (our phenomenal surgeon), Dr. Rome (cath Dr.), Dr. Rychik (cardiologist) and 2 specific members of the transplant team. All 5 have not been together, so until they are, Caelen's case is on hold. But, we have time, so I'm not pushing for answers, and he's not urgent. Good things in my mind. When transplant time does come though, we will relocate to Philly to be near CHOP.
So my already full plate has become a little more crowded. I am in the process of finding a new school for Caelen, new services, doctors, etc. As well as figuring out how I am going to get us down there. We will move in with my sister Jen and her family until we get settled, and look for a place of our own in the meantime. She lives in Jupiter and the school system there is great. I've already gotten some really good leads on doctors for Caelen by linking up with a heart mom group right in Jupiter.
Thank you for the continued love and support that you have shown all of us. Martin, Caelen and I couldn't have done it with out you. Please continue to keep our miracle boy in your prayers.
Love, Katye
